So my daughter has HIE and spent the first 3 weeks of her life in the NICU. Tomorrow is her neurological consultant to check on long term damage. I just need some positive energy.
Strength to you brother dad. Our youngest had PPHN with periods of hypoxia, especially before they correctly diagnosed it and started nitric oxide treatment. 11 days in NICU and 2 years of neuro/dev checkups and we’re finally out of protocol. It’s nerve wracking all the way through. Things are pretty good all things considered.
Fingers crossed for you man, I’m going through a lot of the same thing, my son is in NICU right now because of hydrocephalus caused by a stroke. We were told there is brain damage. All you can do is take it one day at a time. We have been told stories from parents who went through this from one end of the spectrum to the other, babies brains are miraculous because they are still developing and forming those neurological connections, it’s possible the brain rewires around damaged parts and there is minimal effect on them. You’re in my thoughts man keep fighting the good fight and that kid will grow up knowing their parents love them.
My son was stillborn at 22 weeks. We held him and that was all we ever got of my boy. We spread his ashes at sea. My wife is 20 weeks pregnant with our daughter now. Your daughter has made it this far. Keep the faith, one day at a time, that she she will go a bit further, each day. Be strong for your wife, and be strong for your baby girl. Y’all have made it this far.
Fellow dad with a stillbirth son at 21 weeks here, and now with a 4-year-old girl and 2-year-old boy. I commend you for your encouragement and want to do the same for you. I know what it is to pray for that kid to stay in for one more day, and I know you two are practically holding your breath until you get past that 22 week mark, then until you get to 24 weeks (commonly recognized "minimum" for a viable early birth) and then until you get to 36-40 weeks.
We're 3 years in your future and can tell you everything will be great, possibly challenging, but still great. The doctors won't be able to give you the answers you want, at least not right now. All they can offer are the range of outcomes they have seen, which covers just about every possibility and outcome to the point of not being very helpful. They will use so many words just to say "we don't know". No matter what the outcome is, you will still get that happy feeling from seeing their little face light up when they are happy. They will still surprise you in the most delightful ways. You will still be able to find and create joy in each other. No diagnosis can take that away.
My wife is a NICU nurse and has seen several of these cases. Is there anything noticeable within her behavior? Irritability? Struggling with eating? She looks normal and that's at least partially encouraging even though theres obviously no use in us speculating from a keyboard.
my daughter was diagnosed with HIE at birth. We spent 6 weeks in the NICU. She is about to turn 2 years old. Spends all day running around like a maniac and is starting to put 2 word sentences together.
My wife was a HIE baby, there were some long term effects but she's the mother of two beautiful children and she's an incredible woman. And I don't know if it's related to it but she also farts - a lot.
Suicide Hotline Numbers If you or anyone you know are struggling, please, PLEASE reach out for help. You are worthy, you are loved and you will always be able to find assistance.
Another Girl dad checking in! Good luck to your baby girl, she has such a ridiculously cute smile. Keep the positive thoughts going, and, like me you want to spend every waking moment near her but don't forget to get rest, water and food aplenty as well
Hey! I’m not a parent, but I felt called to tell you: truly believe with every bit of faith in you, that your daughter will be okay and so will you. I’m sending so much healing to you and your baby.
Sending good vibes to your family and that beautiful little star you have. Kids are resilient and their bodies can make all kinds of amazing adjustments
Hey OP, mom-lurker here. At 3 weeks old, my daughter was diagnosed with a rare blood infection that traveled to her brain and caused some brain damage/injury. I’ve been where you are (and just a few months ago).
Sending good vibes your way brother. My little guy spent his first week in the NICU as well and I know that feeling. Praying for good news for you and your little one.
Everything is gonna be ok. If there is damage it just means she will need you more. My brother and I both had issues it it actually made us closer to our parents. She will love you just the same. Sending well wishes.
To you and all the parents going through the same situation, my heart goes out to everyone who’s in the same boat. You all are strong and loving parents, and may your little ones feel they’re absolute best and fully recover. The feelings you all have are valid that’s for sure. Every moment is definitely precious. Hoping for the best that they can recover completely and safely. May everything go well for y’all 🙏🏾
That smile is all i needed to see, that was the cutest damn thing ive seen in weeks. Your baby girl is strong, i think she will pull through and be okay💙
No matter what the outcome may be, your daughter is going to always remember that you were there for everything, since the beginning, whereas so many others would give up in a situation like this. And that is worth it's weight in gold for both of you. I tip my hat to you.
Best of luck to you and your family. Your daughter is absolutely beautiful and the fact that she has a dad like you, willing to share your story and be a champion for her, makes me want to give you a hug, man.
No. You don't. Being that scared and still standing and sane. Dude. You are a fully loaded Dad mobile. Your family should be naming parking spots for you. Whatever happens, life is amazing, Terrible, and amazing. Best of Luck.
I may be late, but I’m still sending you hopeful and positive vibes from one dad to another. Take it one step at a time, keep strong and try to rest when you can. Much love
My daughter was born with global brain damage due to HIE. It's been a struggle. We've been on supplemental oxygen for about 6 months now, she needs a stomach tube to eat because she can't swallow, she had seizures and her meds cause blindness, and she need hearing aids due to her profound hearing loss. I wouldn't give up holding my girl for the world. It's a long, slow development, but she's getting slightly better each week. Hoping for the best for you.
have trust!!! even if you don’t have some higher power to trust in, trust in yourself and the professionals and your beautiful child! all you can do is hope right now, and although that might make you feel helpless, hope has the power to creat beauty. the whole concept of children never goes according to plan, but YOU will be there for every step and there is not a single thing you can’t handle!!! powers to the parents, you got this👍👍👍
Best of luck bud 🙏🏽. Don't want to give false hope but babies do have amazing neuroplasticity!!
Thanks!
Love that second pic with the smile
Her smile lights my world.
Strength to you brother dad. Our youngest had PPHN with periods of hypoxia, especially before they correctly diagnosed it and started nitric oxide treatment. 11 days in NICU and 2 years of neuro/dev checkups and we’re finally out of protocol. It’s nerve wracking all the way through. Things are pretty good all things considered.
I am sorry you went through that, people truly don’t understand what it means to just want a happy healthy baby.
Fingers crossed for you man, I’m going through a lot of the same thing, my son is in NICU right now because of hydrocephalus caused by a stroke. We were told there is brain damage. All you can do is take it one day at a time. We have been told stories from parents who went through this from one end of the spectrum to the other, babies brains are miraculous because they are still developing and forming those neurological connections, it’s possible the brain rewires around damaged parts and there is minimal effect on them. You’re in my thoughts man keep fighting the good fight and that kid will grow up knowing their parents love them.
My son was stillborn at 22 weeks. We held him and that was all we ever got of my boy. We spread his ashes at sea. My wife is 20 weeks pregnant with our daughter now. Your daughter has made it this far. Keep the faith, one day at a time, that she she will go a bit further, each day. Be strong for your wife, and be strong for your baby girl. Y’all have made it this far.
Congrats. Sending you nothing but warmth and love, Daddio. Stay strong...you son can't wait to see you smile while you hold your daughter
Fellow dad with a stillbirth son at 21 weeks here, and now with a 4-year-old girl and 2-year-old boy. I commend you for your encouragement and want to do the same for you. I know what it is to pray for that kid to stay in for one more day, and I know you two are practically holding your breath until you get past that 22 week mark, then until you get to 24 weeks (commonly recognized "minimum" for a viable early birth) and then until you get to 36-40 weeks.
My youngest had moderate-severe HIE. He is nearly two and has had no lasting side effects. It can happen. Good luck!
Hear is hoping, thanks
Beautiful smile (and double chins) :)
Thanks!
Positive vibes to you and your little lady from me and mine.
Wishing you the best, Dad. You’re daughter is beautiful, and you’re clearly a great and loving father.
Thanks, she deserves it.
We're 3 years in your future and can tell you everything will be great, possibly challenging, but still great. The doctors won't be able to give you the answers you want, at least not right now. All they can offer are the range of outcomes they have seen, which covers just about every possibility and outcome to the point of not being very helpful. They will use so many words just to say "we don't know". No matter what the outcome is, you will still get that happy feeling from seeing their little face light up when they are happy. They will still surprise you in the most delightful ways. You will still be able to find and create joy in each other. No diagnosis can take that away.
My wife is a NICU nurse and has seen several of these cases. Is there anything noticeable within her behavior? Irritability? Struggling with eating? She looks normal and that's at least partially encouraging even though theres obviously no use in us speculating from a keyboard.
my daughter was diagnosed with HIE at birth. We spent 6 weeks in the NICU. She is about to turn 2 years old. Spends all day running around like a maniac and is starting to put 2 word sentences together.
Lovely. Hang in there.
Remember this mantra: whatever comes, I can handle it.
Sending warm thoughts and positive vibes your way. You (& she) have got this.
Thanks.
Good luck brother. She's beautiful!!
Best wishes dad, she’s a beautiful lady.
Whatever news you get, it’s obvious she already feels joy being held by you which is the most important thing.
Hey friend.
All the best from one dad to another. Be thinking of y’all tomorrow.
My wife was a HIE baby, there were some long term effects but she's the mother of two beautiful children and she's an incredible woman. And I don't know if it's related to it but she also farts - a lot.
All the best vibes for you and your family.
Suicide Hotline Numbers If you or anyone you know are struggling, please, PLEASE reach out for help. You are worthy, you are loved and you will always be able to find assistance.
She's a beautiful baby, and she clearly has loving parents. I can't think of anything sweeter than knowing you are there for her.
Thanks.
Sending positive vibes, fellow dad! Good luck to you and your family!
Best of luck! Hope it goes well but no matter what, your love will go a long ways. All the best.
Sending healing energy and lots of positive thoughts your way. Keep us updated! ❤️
Wish you the best of luck bro!
I think picture #2 is your positive energy.
Another Girl dad checking in! Good luck to your baby girl, she has such a ridiculously cute smile. Keep the positive thoughts going, and, like me you want to spend every waking moment near her but don't forget to get rest, water and food aplenty as well
Hey! I’m not a parent, but I felt called to tell you: truly believe with every bit of faith in you, that your daughter will be okay and so will you. I’m sending so much healing to you and your baby.
Best of luck 🙏🏻🙏🏻🙏🏻 keep us posted please
Cuuute! Good luck fellow da-da
All the best!
Man, that baby is adorable
Whatever the news, nothing stands a chance against a father's love. Hold that baby close.
That beautiful girl is strong as an ox! She's got this!
Sending good vibes to your family and that beautiful little star you have. Kids are resilient and their bodies can make all kinds of amazing adjustments
Hey OP, mom-lurker here. At 3 weeks old, my daughter was diagnosed with a rare blood infection that traveled to her brain and caused some brain damage/injury. I’ve been where you are (and just a few months ago).
Hang in there!! Beautiful kiddo
Long range love from Western Australia, mate.
We’re with you in Texas, sending all our love & positive energy your way! ❤️
You're already the Dad she needs.
She is absolutely adorable. The consult will go smoothly, hopefully! Best of luck! Can’t wait for her to go home and you to make beautiful memories ❤️
Positive vibes man, she'll always be your perfect girl.
I’m sitting in the maternity ward right now waiting for my partners active labour to start so we can have our first child.
Sending good vibes your way brother. My little guy spent his first week in the NICU as well and I know that feeling. Praying for good news for you and your little one.
❤️❤️❤️
Praying for you and her and wherever mom is.
You got this dad, just hang in there for her, for mom and for yourself.
Sending positive vibes your way dude
Best of luck. I hope your daughter lives a healthy, long life!
Praying for miracles and Peace of mind!
My best most positive vibe with you and your sweet little girl!!
Everything is gonna be ok. If there is damage it just means she will need you more. My brother and I both had issues it it actually made us closer to our parents. She will love you just the same. Sending well wishes.
I’m so sorry. We’re praying hard for you guys.
look at that beautiful smile. All positive vibes your way
Hang tough dad! Update us.
Godspeed dad
To you and all the parents going through the same situation, my heart goes out to everyone who’s in the same boat. You all are strong and loving parents, and may your little ones feel they’re absolute best and fully recover. The feelings you all have are valid that’s for sure. Every moment is definitely precious. Hoping for the best that they can recover completely and safely. May everything go well for y’all 🙏🏾
Positive vibes from Dad to Dad. That smile in the second photo! Cute
I’m sending all the positive vibes!!! 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼❤️❤️❤️
Stay strong buddy. Keep making her smile
May the Gods smile on you good sir.
Sending love
Sending positive vibes your way!!
Hey dude best of luck!
You got this man. Hugs.
Be strong and try to be positive. Keep that head up and all the best ❤️
I'm pulling for you, man!
I really could never have understood this amount of worry before the whole process of having my kid. I'm praying for you dad, it's going to be great
Sending love!!!💗💗💗💗✨ good luck
Stay strong!
If you ever need anything, reach out
Wishing her well!
GOOD VIBES AT YOU GUYS!
Thinking of you and yours bro.
Best of luck to you. Give yourself permission to hope for the best. We are all here for you
Positive vibes man, positive vibes.
Prayers for you my dude. I can only imagine what you are going through. I sincerely hope everything turns out alright.
Positive energy incoming. Great smile on second pic!
That smile is all i needed to see, that was the cutest damn thing ive seen in weeks. Your baby girl is strong, i think she will pull through and be okay💙
No matter what the outcome may be, your daughter is going to always remember that you were there for everything, since the beginning, whereas so many others would give up in a situation like this. And that is worth it's weight in gold for both of you. I tip my hat to you.
Best of luck to you and your family. Your daughter is absolutely beautiful and the fact that she has a dad like you, willing to share your story and be a champion for her, makes me want to give you a hug, man.
No. You don't. Being that scared and still standing and sane. Dude. You are a fully loaded Dad mobile. Your family should be naming parking spots for you. Whatever happens, life is amazing, Terrible, and amazing. Best of Luck.
We’ll she is positively cute and beautiful!
She is beautiful.
What a smile she has, brother. Hope it all goes well x
You all can get through this! Lots of kids start out in the NICU and go on to very healthy and successful childhoods! Sending support and love!
Good Thoughts and Prayers coming at you from Charlotte NC.
Strength man. We live in the future! Sometimes, science can do some amazing things.
Such a cutie pie! Stay strong, brother.
Be strong for her. Praying right along side you, fellow Dad.
best wishes man. my baby was in nicu also. stay tough for your family and baby.
I may be late, but I’m still sending you hopeful and positive vibes from one dad to another. Take it one step at a time, keep strong and try to rest when you can. Much love
I've been checking in for updates every day. Your family has been on my mind. I hope you're doing okay
My daughter was born with global brain damage due to HIE. It's been a struggle. We've been on supplemental oxygen for about 6 months now, she needs a stomach tube to eat because she can't swallow, she had seizures and her meds cause blindness, and she need hearing aids due to her profound hearing loss. I wouldn't give up holding my girl for the world. It's a long, slow development, but she's getting slightly better each week. Hoping for the best for you.
Lotta love to you all! Thinking warm, positive thoughts for you and your beautiful family ❤️
👉😇😇😇😇😇👶👶👶👶😇😇😇😇😴😴😴😴😴😴👈
Sorry if this is too personal, but can you say what caused the HIE primary energy failure?
Wow thank you all for your support, it means a lot.
<3
Stay strong!
have trust!!! even if you don’t have some higher power to trust in, trust in yourself and the professionals and your beautiful child! all you can do is hope right now, and although that might make you feel helpless, hope has the power to creat beauty. the whole concept of children never goes according to plan, but YOU will be there for every step and there is not a single thing you can’t handle!!! powers to the parents, you got this👍👍👍
❤️❤️❤️
I’ll pray for you. That is really scary.
Rooting for you and your angel OP!! Good luck!!!
Beautiful girl, good luck!
Update us when you can. Sending lots of love. She’s precious.
I wish you the best!
Hoping for the best for you bro, you have my love with you and your family.
I hope the meeting went well.
Try to not let the MRI results get to you (regardless what they say).
How is your daughter doing now?