On visanne myself, which is progesterone only, it's not considered as a birth control pill but a treatment for endometriosis - but it is essentially a birth control pill.
I take visanne the brand name of dienogest, it works great for me! Not 100 % better but I am way more functional on it. Note however I tried the generic dienogest and it didn't work for me, the gyno wrote me afterwards a script for visanne specifically.
Following, I've tried everything you said... Physio, stretching (makes it worse?!), Tens, heat pad, voltaren, CBD or THC cream, hot baths, Epsom salt baths. They are all temporary but I wish there was something more long term. I'm also prescribed muscle relaxers that help a tiny bit.
We unfortunately live in a lower vibrational realm, there's no doubt in that. I believe we're put on this planet to learn hard lessons and feel pain so our soul can reach a higher vibrational realm or become a spirit guide to others living here. At least that's what I keep telling myself so I have hope in the afterlife.
Not really other than meditation, my doctors don't believe pain makes the heart rate go up especially my pain doc he keeps telling me this because I explain during a pain flare also I have high blood pressure and heart rate I went to the ER once for it. He just said nah can't be related it's a myth still being worked out and he thinks I have heart problems or cardiovascular ones and wants me to see doctor for it. Have you told your pain doc and see what they say?
Not sure if you're still following this thread, but I am on blood thinners for life due to blood clots suspected by nuva ring. I asked for the surgery and was told we need to explode every treatment possible (taking into consideration estrogen for blood clots) before even discussing a lap. She doesn't advise doing a lap because there's always a chance the endo will come back and I'll still be in pain and putting me in risk of another blood clot is too risky and dangerous for something that isn't guaranteed to help.
With ME CFS, I can't control the fatigue, if I'm tired I will pass out no matter what, even if it's 2pm with people over. I get more "shooting pains" with it too. Fibro just hurts. Everywhere. Muscle pain and stiffness. I'm tired with fibro too but not to a passing out point I just get super tired and lots of brain fog and have a hard time concentrating.
I have ME and fibro. Some specialists think theyre the same but I disagree..I can usually pinpoint one from the other and feel like they're distinct despite similar mechanisms. But yea chronic fatigue is just a symptom of literally hundreds of illnesses. I'm guessing you and other commenters are meaning CFS/ME
On paper they might sound the same, why doctors get them confused but I agree with you, they both feel different. Once I finally got my symptoms to a manageable level, now when I have flares I can distinctly tell if it's fibro or ME CFS.
I get different sensations: -intense period cramping during pms/menstruation -sharp stabbing pain in certain spots like the ovaries -heavy aching pain ALL THE TIME in my lower back, pelvis and legs
Can someone explain why my post is getting downvotes for sharing a free screening of this documentary I found? Just trying to help. I don't understand why people would downvote this.. genuinely confused.
Crackers, chips, soup, toast with whatever sounds appealing, bagels, anything salty, fries and chicken fingers, eggos. Probably not the healthiest foods, but it gets me by!
My experience: Cutting out alcohol/sugar/refined starches and troubleshooting sleep issues - major impact. Adding fruit/veg and exercise - moderate impact. Removing red meat/dairy - no impact.
Death metal. I think it helps me concentrate by blocking all outside distractions and the vocals help me concentrate since I can't focus on the lyrics since I can't understand them lol
I have a hard enough time in life as is, with the state of the world and having a chronic illness, bringing a child in would push that difficulty to a point that I know would be unbearable for me and I wouldn't be able to be the parent I would want to be for my child.
On visanne myself, which is progesterone only, it's not considered as a birth control pill but a treatment for endometriosis - but it is essentially a birth control pill.
I’ve been on visanne. It gave me really bad anxiety
So sorry you had that experience!
I take visanne the brand name of dienogest, it works great for me! Not 100 % better but I am way more functional on it. Note however I tried the generic dienogest and it didn't work for me, the gyno wrote me afterwards a script for visanne specifically.
Yep! These are my main symptoms along with a bad headache.
Ow. And tired. That is all.
Depends on the person.
Protein shake or protein bar.
Making my bed and putting away my clothes!
Following, I've tried everything you said... Physio, stretching (makes it worse?!), Tens, heat pad, voltaren, CBD or THC cream, hot baths, Epsom salt baths. They are all temporary but I wish there was something more long term. I'm also prescribed muscle relaxers that help a tiny bit.
What kind of muscle relaxers? And what do they help?
Prescription, they help relax the pelvic floor muscles
We unfortunately live in a lower vibrational realm, there's no doubt in that. I believe we're put on this planet to learn hard lessons and feel pain so our soul can reach a higher vibrational realm or become a spirit guide to others living here. At least that's what I keep telling myself so I have hope in the afterlife.
I like video games, or phone games, crafting if I have the energy, reading if I don't have brain fog, Pinterest, walk outside and very gentle yoga
Not really other than meditation, my doctors don't believe pain makes the heart rate go up especially my pain doc he keeps telling me this because I explain during a pain flare also I have high blood pressure and heart rate I went to the ER once for it. He just said nah can't be related it's a myth still being worked out and he thinks I have heart problems or cardiovascular ones and wants me to see doctor for it. Have you told your pain doc and see what they say?
Lol, a myth... No I haven't asked the doc yet. I probably should.
Appropriate video to pop up on my feed while I'm on the loo!
We understand you.
Not sure if you're still following this thread, but I am on blood thinners for life due to blood clots suspected by nuva ring. I asked for the surgery and was told we need to explode every treatment possible (taking into consideration estrogen for blood clots) before even discussing a lap. She doesn't advise doing a lap because there's always a chance the endo will come back and I'll still be in pain and putting me in risk of another blood clot is too risky and dangerous for something that isn't guaranteed to help.
What difference do you feel between the flares?
With ME CFS, I can't control the fatigue, if I'm tired I will pass out no matter what, even if it's 2pm with people over. I get more "shooting pains" with it too. Fibro just hurts. Everywhere. Muscle pain and stiffness. I'm tired with fibro too but not to a passing out point I just get super tired and lots of brain fog and have a hard time concentrating.
I have ME and fibro. Some specialists think theyre the same but I disagree..I can usually pinpoint one from the other and feel like they're distinct despite similar mechanisms. But yea chronic fatigue is just a symptom of literally hundreds of illnesses. I'm guessing you and other commenters are meaning CFS/ME
On paper they might sound the same, why doctors get them confused but I agree with you, they both feel different. Once I finally got my symptoms to a manageable level, now when I have flares I can distinctly tell if it's fibro or ME CFS.
I get different sensations: -intense period cramping during pms/menstruation -sharp stabbing pain in certain spots like the ovaries -heavy aching pain ALL THE TIME in my lower back, pelvis and legs
A giant tshirt and underwear.
Ain't no other way.
Can someone explain why my post is getting downvotes for sharing a free screening of this documentary I found? Just trying to help. I don't understand why people would downvote this.. genuinely confused.
Am I the only one who's bothered that Below The Belt (aside from occasional free screenings) is stuck behind a PBS paywall?
Agreed, I've been trying to view this documentary forever, but can't afford to pay to host a viewing.
First of all, it's a blog and you cant lie about it. :) Everyone can check it out for themselves.
Quoted from the link you sent me:
Nope, this is what you said in your original comment, now you are just trying to save face and you disregarded all my proof of the DAO test:
Look at my reply when you told people to downvote me.
Crackers, chips, soup, toast with whatever sounds appealing, bagels, anything salty, fries and chicken fingers, eggos. Probably not the healthiest foods, but it gets me by!
I use an app with a pin code to get in. I'll write in it for 2 days and then forget it exists hahaha.
My experience: Cutting out alcohol/sugar/refined starches and troubleshooting sleep issues - major impact. Adding fruit/veg and exercise - moderate impact. Removing red meat/dairy - no impact.
Yep, pretty much same here.
Death metal. I think it helps me concentrate by blocking all outside distractions and the vocals help me concentrate since I can't focus on the lyrics since I can't understand them lol
I have a hard enough time in life as is, with the state of the world and having a chronic illness, bringing a child in would push that difficulty to a point that I know would be unbearable for me and I wouldn't be able to be the parent I would want to be for my child.
Separate rooms! You'll adapt! Sleep is way too important for me to sleep in the same bed out of guilt.